HDSA Fundraiser! Crafty Parcels for a Cause that is Close to My Family!
Last year, we hosted a fundraiser for HDSA! (Huntington’s Disease Society of America) and you loved it so much that it had great success in raising over $100,000 for HDSA. It is a charity that is very personal and close to my heart because it affects my family. My husband lost his mother, grandmother and many other family members to Huntington’s Disease. Huntington’s Disease (HD) is a rare, genetic, neurodegenerative disease with a devastating impact on individuals and entire families. It is hereditary and it is terminal. Through the years we have met many wonderful people in the HD Community and when a cure is found it will bring enormous positive impact on families around the world.
So far, there is no cure for Huntington’s Disease. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
My husband has HD and actively suffers from many of the symptoms. HD is a rare, genetic, terminal disease that has no cure. It is like having Alzheimers, Parkinsons, and ALS simultaneously. Imagine losing your memory, muscle control, and ability to control your emotions all at once. It’s devastating for the individual and entire family. We need to find a cure. Children of an HD Parent each have a 50/50 chance of inheriting this disease.
Donations help support the families, doctors, scientists, researchers, everyone in the HD community who are working tirelessly for a cure.
It is with a sense of urgency that I am helping raise money for much needed research and development of a cure and to support other families of this deadly and horrific disease.
If you are interested in purchasing a box of goods, please know that 100% of the net sales of the box will be going to support the Central Ohio HDSA as we work to find a cure and support the HD Community.
- $50 donations receive a box of craft supplies valued at over $100
- $150 donations receive a box of craft supplies valued at over $300
If you are not interested in a crafty parcel, but would still like to make a direct donation without a special gift, that would be WONDERFUL, every penny helps. To do so, please click or tap HERE.
If you would like to learn more about HD, please click or tap HERE.
Some of the brands and people who have generously donated product for the donation boxes include but are not limited to:
- Simon Says Stamp
- Tim Holtz and Mario Rossi
- Gina K Designs
- Ranger Industries
- Waffle Flower Crafts
- Lawn Fawn
- Hero Arts
- Art Impressions
- My Favorite Things
- Therm O Web
- American Crafts
- Brutus Monroe
- Clearly Besotted
- Colorado Craft Company
- Crafter’s Companion
- The Crafter’s Workshop
- Heffy Doodle
- La-La Land Crafts
- Memory Box
- Newton’s Nook
- Picket Fence Studios
- Reverse Confetti
- Scrapbook Adhesives
- Simple Stories
- Studio Katia
- Sunny Studio Stamps
- Trinity Stamps
- Whimsy Stamps
With love and gratitude,
Simon Says Stamp Founder
Heidi, I’m honored to donate again this year. Such an important cause! Thanks for sharing a link to donate without receiving a crafty parcel. Sending love and hugs to you and your family. ❤️
I will purchase a box. My mother had Early Onset Alzheimer’s and my brother-in-law had ALS at the same time. Both very cruel diseases. HD is the cruelest. Praying for a cure for all these neurological nightmares. Thank you for all you do Heidi!
Thanks for the information you shared. Loved the way you explained everything in this blog.
I’d love to order and support this but live in France. Good luck with this fund raiser
Hi Katiejane, it is still possible for you to make a donation if you would like to support.
Awesome cause!! Thanks for sharing your story. And a Big thanks to SSS and all the generous companies!
Thanks so much for all the donations ;)
Just love Simon says stamps
What a great cause
I like that album released by Mojoheadz records, but I don’t know what style of music it is. https://gaana.com/album/mojoheadz-records-fake
I just placed my crafty order and I can’t wait to pass this along to someone as a gift while supporting this cause! Thank you for all you do to raise awareness and help with research. Sending love and prayers for your family! ❤️
Heidi, I was honored to donate, but most of all I am praying for you and your family. My step-son’s lost their mother to HD and my oldest step-son passed away from an accident when he was only 24 but had been diagnosed with HD. I thanked God for not letting him suffer with that disease. It was devastating losing him at such a young age but we saw what HD did to other members of their family. My youngest step-son has been tested and is clear, thank God.
May God bless your family and give them strength. Live,laugh, and love every moment ❤
So sorry that you and your family are going through this Heidi, and I hope this fundraiser will go a long way to help in finding a cure. I have donated directly into the fund xxx
canadianpharmacy canadian pharmacy express
healthy man viagra
Love you Heidi ?